Here's a little update on how the shop's looking at the moment......





I'm sorry I haven't done much blogging lately; there always seems to be something more urgent (and more boring, like paperwork) that takes precedence.




My online shop has also been sorely neglected....I must rectify that soon!

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Rare Disease Day and the promises of personalized medicine

O ur daughter Ellen wrote the post that I republish below 3 years ago, and we've reposted it in commemoration of Rare Disease Day, Febru...